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Broadway stars come out in support of the autism community!

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The first annual “Arts for Autism” benefit for Autism Speaks took place last night at the Gershwin Theater in New York City to raise funds and awareness in support of the autism community.

June 21, 2016

The first annual “Arts for Autism” benefit for Autism Speaks took place last night at the Gershwin Theater in New York City to raise funds and awareness in support of the autism community The show was hosted by Tony Award winner Kelli O’Hara along with The Doo Wop Project and a star studded line-up that included Carli Hughes from “Pippin,” Erin Davie and Emily Padgett from “Side Show,” Joseph Morales from “In the Heights,” Jennifer DiNoia , Julia Murney Ginna Calire Mason and Julie Reiber from “Wicked,” Paul Alexander Nolan from “Bright Star,” Erikka Walsh from “Once,” Ben Cook, DeMarius Copes, Daniel J. Deluca and Damon Gillespie from “Newsies,” along with John Michael Dias from “Jersey Boys.”

The producers, Michael Holzer of Educational Travel Adventures, and Jacque Carnahan of Believe NYC were introduced to Autism Speaks by long-time supporter, Marissa Eisenmann, NJ. They had the idea to combine the joy of song and dance with seasoned and novice artists to spread autism awareness and raise funds for a worthy cause.. By interlacing the practiced perfection of Broadway stars with the energy and talent of aspiring young performers from around the country, including the amazing voice of autism self-advocate, Gianna Hitsos, they created a spectacular night. Adding in the emotional words from Autism Speaks staffer Kerry Magro, a well-recognized autism author, producer and self-advocate, of his own journey of challenge and success, made the evening a very special one indeed - a night of acceptance, inclusion, community and love! .

Arts for Autism raised $36,000 for Autism Speaks and announced that the second annual show will be at the Gershwin next year on June 19, 2017.


Autism Speaks and SunTrust Foundation host financial workshop

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Autism Speaks and the SunTrust Foundation host first ever financial planning workshop in National Habbor, MD on June 25.

June 26, 2016
 
All parents worry about their children’s future, but for the nineteen percent of individuals with a disability, that parental concern is even greater, especially when it comes to financial planning and the transition to adulthood. This was very apparent on Saturday as more than 300 people traveled from five different states to attend the first Special Needs Conference at the Gaylord National Resort & Convention Center in National Harbor, Maryland
 
The morning was dedicated to special needs financial planning and was funded through a partnership with the SunTrust Foundation as part of a regional series of workshops dedicated to “Lighting the Way to Financial Well-Being” through education and resources. Before breaking out into sessions providing information on four key areas of special needs financial planning, attendees heard from Reilly Morrison, Trust Advisor with SunTrust Bank. Following his introduction and overview, attendees received information from experts in small breakout sessions - a panel comprised of Stuart Spielman (Senior Policy Advisor and Counsel for Autism Speaks), Mary G Morris (Chief Executive Officer of Virginia 529), and Anne Blackfield (Director of Interagency Affairs at the Maryland Department of Disabilities) who led the discussion on the recently passed Achieving a Better Life Experience (ABLE) legislation, its history and the state implications. Don Ryan, Vice President of National Care Advisors, educated families on what funding streams may be available to them and how to access those oftentimes much needed funds. The session explaining the different types of guardianship options available to parents of children with special needs was led by attorney Matt Bogin (Matt Bogin Law) and the father of a young man with autism, Mark Friese. Lastly, the time dedicated to providing education about Special Needs Trusts was led by SunTrust’s Reilly Morrison.
 
Following the morning session, attendees visited over 20 resource fair providers during the lunch break and stayed for the four afternoon workshop sessions funded by a generous grant from the Isadore and Bertha Gudelsky Family Foundation. This event marked the fourth of a six part series of transition town halls with adult services workshops thanks to the family foundation’s commitment to the organization and cause. Gregory Koch, an adult with autism who serves as a Risk Analytics Associate for Freddie Mac, kicked off the opening session by talking about his experience in transitioning into the real world; highlighting the challenges he has faced and overcome. He also shared with the audience that he was celebrating his one year anniversary at Freddie Mac after successfully completing the company’s internship program designed for adults on the spectrum, which led to the job he has today. Afterwards the attendees visited workshops based on their areas of interest, including post-secondary education led by Dr. Aaron Rakow, President of College Steps; housing led by Angela Lello, Director For Housing, Community Living for Autism Speaks; transition led by Tia Marsili, Director of Trust for The ARC of Northern Virginia; and employment led by David Kearon, Director of Adult Services for Autism Speaks. 
 
SunTrust Workshop

Dollywood amusement park builds sensory room for people with autism

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We want to visit this park!

July 06, 2016

Dolly Parton’s Dollywood, an amusement park in Pigeon Forge, Tennessee, are going the extra mile to help those with autism through a new ‘calming room’ for children with autism. This started through the efforts of Dollywood team leader Judy Toth who noticed that more and more kids with autism were coming to the park with their families.

According to The Huffington Post Toth in her research came up with this idea for those with autism who may need a minute to unwind during their visit. This led to her reaching out to Autism Speaks to help figure out what this space would look like that includes several sensory-related toys.

You can read more about this story at The Huffington Post here

This isn’t the first park that has got involved to help our community. Earlier this year Legoland Florida partnered with Autism Speaks to help focus on new initiatives that will make their park more accommodating to everyone who has special needs. You can read more about that initiative here

Autism Speaks Launches New Autism Speaks Walk PSAs

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In new PSAs, families explain why fundraising for Autism Speaks Walk is critical to generating funds for innovative autism research and supports

In new PSAs, families explain why fundraising for Autism Speaks Walk is critical to generating funds for innovative autism research and supports

July 20, 2016

New York, N.Y.  (July 20, 2016) – Autism Speaks, the world’s leading autism science and advocacy organization, today launched two new Autism Speaks Walk Public Service Announcements (PSAs). Each PSA features the story of a parent and their child with autism and why it is important to fundraise for the Autism Speaks Walk.

Autism Speaks Walk is the world’s largest fundraising event to support the diverse needs of the autism community. This grassroots movement is powered by parents of children on the autism spectrum, generating funds that fuel innovative research and make connections to critical lifelong supports and services.

The new PSA campaign aims to motivate the public to register and fundraise for Autism Speaks Walk, and explains how the funds raised are essential to continuing the innovative research, family and adult services, and advocacy and awareness efforts that define Autism Speaks’ mission. The campaign builds on the success of the Autism Speaks Walk program over the past ten years, and calls for further support to build on the progress made thus far.

Autism Speaks Walk is the heart and soul of our organization,” said Autism Speaks President and CEO Angela Geiger. "The PSAs are designed to convey how essential it is to our mission. By fundraising for Autism Speaks Walk, you are joining a community of people who support a better world for all people on the autism spectrum.”

One of the PSAs features Adam Mojica and his father, Jesse. Jesse discusses the sense of celebration, acceptance and progress that his family has found at the Autism Speaks Walk. Jesse appeals to the importance of fundraising as an essential tool to improving the world and lives of all people living with autism.

“My experience with the Walks just have changed my life,” says Jesse. “Fundraising for Autism Speaks is very important because that’s where we’re going to get the answers. Research, Advocacy, all of the changes that we need to make in this society to help those with autism. It is imperative that we do all that we can to fundraise.”

The second PSA features Jacob Sanchez and his mother, Carmen. It highlights the incredible community fostered by the Autism Speaks Walk. Carmen calls for the public to register for an Autism Speaks Walk today, and fundraise to support the community and the lifelong supports and resources that are so vital.

“We felt like we were alone, and now we are a part of this big amazing community,” says Carmen. “The hope is that this can be turned to resources for people in our community. Register for an Autism Speaks Walk.”

The PSAs will air across multiple media channels and will promote the fall 2016 Autism Speaks Walk season. To learn more about the Walk and how to register and begin fundraising, visit www.AutismSpeaks.org/Walk.  

About Autism

Autism is a general term used to describe a group of complex developmental brain disorders – autism spectrum disorders – caused by a combination of genes and environmental influences. These disorders are characterized, in varying degrees, by communication difficulties, social and behavioral challenges, and repetitive behaviors. An estimated 1 in 68 children in the U.S. is on the autism spectrum. 

About Autism Speaks

Autism Speaks is the world’s leading autism science and advocacy organization. It is dedicated to funding research into the causes, prevention, treatments and a cure for autism; increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families. Autism Speaks was founded in February 2005 by Suzanne and Bob Wright, the grandparents of a child with autism. Since its inception, Autism Speaks has committed more than $570 million to its mission, the majority in science and medical research. On the global front, Autism Speaks has established partnerships in more than 70 countries on five continents to foster international research, services and awareness. To learn more about Autism Speaks, please visit AutismSpeaks.org.

SunTrust Financial Planning Workshop Tampa Recap

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More than one hundred individuals with disabilities, their family members, and local service providers came together in Tampa, Florida on Saturday to discuss the financial planning concerns that all parents have, but can be far more daunting when a child is diagnosed with a disability.

July 25, 2016

More than one hundred individuals with disabilities, their family members, and local service providers came together in Tampa, Florida on Saturday to discuss the financial planning concerns that all parents have, but can be far more daunting when a child is diagnosed with a disability. Thanks to a partnership with the SunTrust Foundation, the central Florida office of Autism Speaks was able to provide a forum for experts to share their knowledge and resources on special needs financial planning, as part of a regional series of workshops dedicated to “Leading the Way to Financial Well-Being” through education and resources.

The morning began with a keynote introduction from Reilly Morrison, Trust Advisor with SunTrust Bank, speaking about his personal passion to help individuals with special needs, as well as the importance of the SunTrust Foundation’s role in providing financial literacy to those in need. Following his introduction and overview, attendees were able to speak with local disability service providers about the services and resources available in the Tampa area, not limited to financial planning. Then the programming continued as families received information from experts in small breakout sessions on the topics of ABLE Accounts, accessing federal and state funding, Guardianship options, and Special Needs Trusts. Evan Whittle of Raymond James, an expert on the Achieving a Better Life Experience (ABLE) legislation recently passed in Florida, answered questions about the rules and regulations as it relates to the state, providing necessary information to those in attendance to make informed decisions about setting up and utilizing an ABLE account; Stacy Colebrook of National Care Advisors, educated families on what funding streams may be available to them and how to access those oftentimes much needed funds; Diane Zuckerman, an attorney specializing in elder and special needs law, provided information about the differing levels of guardianship and how to determine which option is best for each family; and the time dedicated to providing education about Special Needs Trusts was led by SunTrust’s Reilly Morrison.

As the Special Needs Financial Planning Workshop came to a close, families left with an increased knowledge about key areas of financial planning, as well as resources to support their own financial journey, including the Special Needs Financial Planning Tool Kit and information from experts and disability service providers in the Tampa area. The next Workshop to be held by the central Florida offices of Autism Speaks will be on August 13 at the University of Central Florida in Orlando. You can register for that event here: http://events.autismspeaks.org/FinancialPlanningORL

McAlister’s Deli is partnering with Autism Speaks

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July 26, 2016

McAlister’s Deli is partnering with Autism Speaks for the entire month of August in their “Cookies for a Cause” campaign.  The blue sugar cookies will be sold at all locations across the country.  For every cookie sold, McAlister’s Deli will donate $ .75 cents to Autism Speaks! So, stop by your local McAlister’s Deli and grab a cookie or two or three…  it’s a sweet way to support the autism community.  Thank you, McAlister’s Deli! https://www.mcalistersdeli.com/

Americans with Disabilities Act: Autism advocates celebrate 26 years

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Americans with Disabilities Act celebrates 26th Anniversary

Autism Speaks advocates will gather just before sunset illuminated in blue lights to “Light It Up Blue” near the White House.

July 26, 2016

On July 26, 1990 The Americans with Disabilities Act (ADA) was signed by President George H.W. Bush and has improved the lives of millions of Americans, including many with autism, by prohibiting discrimination in employment, education and other public accommodations. Autism Speaks advocates will march to honor the 26th anniversary of the ADA in Washington, DC on July 26 at 8pm in Lafayette Park near the White House.

Autism Speaks advocates will gather just before sunset illuminated in blue lights to “Light It Up Blue” as part the ongoing campaign to shine a bright light on the need to implement policies that improve the lives of individuals and families affected by autism.

Autism Speaks mourns the loss of Co-founder Suzanne Wright

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What Suzanne Wright has done to raise awareness of autism is immeasurable. Even during the past few difficult months, her determination never wavered. For more than a decade, she has been a tireless advocate on the national and international stage.

July 29, 2016

New York, N.Y. Autism Speaks announced today that its co-founder Suzanne Wright died this afternoon, Friday, July 29, at her home in Fairfield, CT. Suzanne, who fought a courageous nine-month battle with pancreatic cancer, was surrounded by her family at the time of her death. She was 69.

Autism Speaks Chairman of the Board of Directors Brian Kelly and President and CEO Angela Geiger honored Suzanne’s enduring legacy in a joint statement:  

“What Suzanne Wright has done to raise awareness of autism is immeasurable. Even during the past few difficult months, her determination never wavered. For more than a decade, she has been a tireless advocate on the national and international stage: at the United Nations, on Capitol Hill, at Autism Speaks Walks nationwide, and in personal letters of support to individuals and families affected by autism. Suzanne sparked a global conversation with one question: How can we help people with autism live their best possible lives? Persuading the world to see the potential in each child and adult on the vast autism spectrum is her greatest legacy. As we look to the future, Autism Speaks remains committed to advancing the important mission she began.”

In 2005, Suzanne and her husband, Bob Wright, co-founded Autism Speaks after their grandson, Christian, was diagnosed with autism. Guided by the Wrights’ leadership and vision, Autism Speaks has since grown into the world’s leading autism science and advocacy organization. 

At the helm of Autism Speaks, Suzanne helped create the iconic blue puzzle-piece logo that is now recognized around the world to represent autism. Working with the Ad Council and BBDO Worldwide, Suzanne and Bob Wright launched a ten-year public service announcement campaign that is credited with educating countless families about the early signs of autism. Suzanne also led Autism Speaks’ signature global awareness initiatives. Her indefatigable determination was key to persuading the United Nations to establish April 2nd as World Autism Awareness Day, establishing the annual World Focus on Autism, and launching the international Light It Up Blue campaign, which this year lit landmarks, buildings and homes in 157 countries.

As part of the United Nations’ World Autism Awareness Day, Suzanne addressed the United Nations’ General Assembly every year for eight consecutive years. In addition, in conjunction with this event, she organized and hosted the annual World Focus on Autism, an unprecedented gathering of first ladies and dignitaries from around the world, devoted to planning and coordinating efforts to raise autism awareness. In November 2014, Suzanne spoke at the Vatican’s first-ever conference on autism, where she called for all nations and faiths to “walk next to the 70 million children, teens and adults with autism around the world every day.”

Suzanne was born in the Bronx on December 16, 1946. She was the daughter of James Werner, a lieutenant in the New York Police Department and combat veteran of World War II, and Ruth Tobin Werner, a homemaker. Suzanne was raised in West Hempstead, Long Island. As a high school senior, she met her future husband when she attended a dance at the College of the Holy Cross, where Bob was a student. She knew immediately that he would become her husband.

They married in 1967, between Bob’s second and third year of law school at the University of Virginia School of Law, and moved into married student housing on campus. To help support her husband, Suzanne took a job as the assistant to the manager of the Monticello Hotel.

Suzanne’s education and career ambitions were put on hold while she focused on raising her three children and supporting Bob in his legal and business career, which included a federal court legal clerkship, private legal practice, positions of increasing responsibility at General Electric, and the role of president of Cox Enterprises. In 1986, he was named president and CEO of NBC. She moved her household 11 times in her first 15 years of marriage.

Suzanne quickly became a vital part of the culture at NBC, helping to make the company a warm place where people felt valued and their contributions appreciated. Countless employees were touched by her acts of kindness over the twenty years that she and Bob were part of NBC. Suzanne never hesitated to reach out to members of her NBC family, whether in times of need or celebration.

Her commitment to her husband and to NBC did not keep her from pursuing her dream of earning her college degree. After several years of hard work, she received her Bachelor of Arts degree from Sarah Lawrence College in 1998.

In addition to her work with Autism Speaks, Suzanne had an extensive history of active involvement in community and philanthropic endeavors, primarily focused on helping children. She served on the board of directors for several organizations, including Make-A-Wish Metro New York, the Laura Pels Foundation, the Inner-City Foundation for Charity & Education, and the Philadelphia-based Champions of Caring Project. Suzanne was a trustee emeritus of Sarah Lawrence College, her alma mater, and served on the board of the Tony Randall Theatrical Fund. She also received numerous awards, including the Women of Distinction Award from Palm Beach Atlantic University, the Child Magazine Children’s Champions Award, Luella Bennack Volunteer Award, Spirit of Achievement Award from the Albert Einstein College of Medicine's National Women’s Division, and the Women of Vision Award from the Weizmann Institute of Science.

In 2008, Suzanne and Bob were named in Time 100’s“Heroes and Pioneers” category for their commitment to global autism advocacy. They also received the first Double Helix Award for Corporate Leadership from Dr. James Watson and Cold Spring Harbor Laboratory, the NYU Child Advocacy Award, the Castle Connolly National Health Leadership Award, and the American Ireland Fund Humanitarian Award. The Wrights have received honorary doctorates from St. John’s University, St. Joseph’s University and the University of Massachusetts Medical School. Bob serves on the corporate advisory board of the Lustgarten Foundation, the nation’s largest private nonprofit funder of pancreatic cancer research.

Suzanne is survived by her husband of 48 years, her sister Jayne Tobin, her brothers James and Dennis Werner and three children, Catherine Anne, Christopher James, and Maggie Suzanne. A fourth child, Sarah Suzanne, died in infancy. Suzanne is also survived by six grandchildren, Christian, Mattias, Morgan, Maise, Alex and Sloan. Many aspects of her life and work are prominent in Bob Wright’s recent book, “The Wright Stuff.”

In lieu of flowers, the family requests that donations be made to Autism Speaks or the Lustgarten Foundation, which advances pancreatic cancer research.

Honor the legacy of Suzanne Wright with a donation today.


Cycling 100 miles for autism at annual Bike to the Beach event

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Bike to the Beach Washington, D.C. and Baltimore took place on July 29, 2016. The 100-mile Charity Cycling event, which benefits Autism Speaks and other autism service providers throughout the country, started in Washington, DC or Baltimore, MD (depending on personal preference) and ended in Dewey Beach, Delaware.

August 05, 2016

Bike to the Beach Washington, D.C. and Baltimore took place on July 29, 2016. The 100-mile Charity Cycling event, which benefits Autism Speaks and other autism service providers throughout the country, started in Washington, DC or Baltimore, MD (depending on personal preference) and ended in Dewey Beach, Delaware. Not only did the ride take cyclists through beautiful suburbs, over scenic bridges and onto the beach but it also helped raise funds and awareness in support of the mission to change the future for all who struggle with autism.

This year Bike to the Beach offered 3 ride-distance options and multiple ways to participate with the 100 mile Century Ride from Washington, DC to Dewey Beach, the new 60+ mile Metric Century ride option and the 8-mile Family Challenge.

You can learn more about Bike to the Beach here.

Chefs Bobby Flay, Michael Symon raise funds, awareness for autism

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On August 6th, the 3rd Biennial Autism Speaks Cleveland Chef Gala shined blue on the Cleveland skyline. Hosted by Chef Michael Symon and Special Guest Bobby Flay, over 550 guests enjoyed tastings from 25 local chefs followed by a live onstage cooking demonstration by the Iron Chefs.

August 08, 2016

On August 6th, the 3rd Biennial Autism Speaks Cleveland Chef Gala shined blue on the Cleveland skyline. Hosted by Chef Michael Symon and Special Guest Bobby Flay, over 550 guests enjoyed tastings from 25 local chefs followed by a live onstage cooking demonstration by the Iron Chefs. Emcee Tony Rizzo, from ESPN Cleveland, and auctioneer Billy Harris kept the crowd entertained throughout the night while guests bid on silent auction packages including one-of-a-kind chef packages for private parties and chef tables, as well as live auction packages including exclusive floor seats to a Cleveland Cavaliers game and VIP tickets to The Chew.

The program included a moving tribute to the late co-founder of the organization, Suzanne Wright, as well as honored Shari and Michael Goldberg for founding the Northeast Ohio Chapter for Autism Speaks. During the program, guests had two opportunities to bid on a chance to sit on stage with either Chef Flay or Chef Symon as they personally cooked and served the winning bidders. Overall, the event has raised nearly $300,000 towards Autism Speaks’ mission of changing the future and improving the lives of those living with autism and their families.

For more information, pictures and to make a donation please visit www.autismspeaks.org/clevelandchefgala or contact us at 216-524-2842.

Celebrities attend poker tournament to support, raise funds for autism

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The 4th Annual Ed Asner & Friends Celebrity Poker Tournament for Autism Speaks was sold out and a huge success raising over $65,000 for Autism Speaks, it was announced by Matt Asner, Director of Corporate Development, Autism Speaks.

August 09, 2016

The4th Annual Ed Asner & Friends Celebrity Poker Tournament for Autism Speaks was sold out and a huge success raising over $65,000 for Autism Speaks, it was announced by Matt Asner, Director of Corporate Development, Autism Speaks. Emmy®-winning actor and autism advocate Ed Asner (The Mary Tyler Moore Show), who has a son and grandson with autism, hosted the event and was joined by Emmy®-winning actress Rosie O'Donnell (The View), Dylan McDermott (American Horror Story), Lou Diamond Phillips (Longmire), Ed Begley Jr. (Ghostbusters), Michael Mckean (Better Call Saul), Elizabeth J. Carlisle, (Bosch) and Steve Wilkos (The Steve Wilkos Show) among many others. The poker tournament, sponsored by Steelcase, took place on Saturday, August 6, 2016 at the USC Tower penthouse at South Park Center.

 

 

In addition to the Celebrity Texas Hold ‘Em Poker Tournament, a special tribute and a moment of silence in memorial for Suzanne Wright, co-founder of Autism Speaks who passed away this week, was presented by Matt Asner.  Wright and her husband, former NBC chief executive Bob Wright, founded the charity in 2005 after their grandson, Christian, was diagnosed with autism. 

Guests also enjoyed a dinner buffet by Patina Catering, cocktails and successful silent/live auctions (speaks16.gesture.com). Top prize was awarded to 1st place winner Yosh Nakano, who received a champion trophy and a two-night stay at Plump Jack Luxury Resorts in Squaw Valley (Tahoe) and weekend rental car from National Car Rental. Second place winner was Matt Asner who received an ipad mini.

We also appreciate all of the sponsors for the 4th Annual Ed Asner & Friends Celebrity Poker Tournament for Autism Speaks who are below...

VENUE SPONSOR – Steelcase; CASINO & DEALER SPONSORS - Daniel Berdakin Family Foundation,

Carmen Finestr; FULL HOUSE SPONSORS - Kamus + Keller Interiors | Architecture, Newmark Grubb

Knight Frank, Tangram, Turelk Constructors, Howard Building Corporation; DINNER SPONSOR-

Environmental Contracting Corporation; CARD & DEALER BUTTON SPONSOR – Environetics;

CELEBRITY SPONSORS- Sarah Silverman, Carmen Finestra; COMMUNITY SPONSORS – Haworth,

Holwick Constructors, Pinnacle Communication Services; MEDIA SPONSORS – Print 2D, TekWorks, Warbasse Media.

You can learn more about the event here

Successful outing at Arkansas walk kickoff and ATN town hall

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On Tuesday, August 9th, Autism Speaks Arkansas in collaboration with the Arkansas Autism Treatment Network (ATN), Arkansas Children’s Hospital and University of Arkansas for Medical Science (UAMS) hosted The 2016 Arkansas Autism Speaks Walk Kickoff and ATN Town Hall.

August 11, 2016

On Tuesday, August 9th, Autism Speaks Arkansas in collaboration with the Arkansas Autism Treatment Network (ATN), Arkansas Children’s Hospital and University of Arkansas for Medical Science (UAMS) hosted The 2016 Arkansas Autism Speaks Walk Kickoff and ATN Town Hall. With 100 people in attendance, teams, families, service providers and autism experts received information about the Autism Speaks Walk and Autism Speaks’ impact in Arkansas, details on some of the ATN’s most out-of-the-box programs including CoBalt, ECHO, and Family Care Navigators, and networked amongst themselves forming an even stronger bond throughout the Arkansas Autism Community.

With Ed Buckner from THV 11 as the night’s Master of Ceremonies, the evening began with a very special performance from Cheer City United: Kronos Cheerleaders, a special needs cheer team. Welcomes were delivered from President and CEO of Arkansas Children’s Hospital, Marcy Doderer, and Chairman, Department of Pediatrics, UAMS and Pediatrician-in-Chief, Arkansas Children’s Hospital, Dr. Richard Jacobs.

All in attendance became excited for the upcoming Walk on October 1. Participants were energized as they learned from veteran top teams creative fundraising tips, heard all of the exciting happenings in the 2016 Walk from Walk Chair, Dawn Itzkowitz, and truly witnessed how each dollar raised through the Walk impacts the state of Arkansas and the autism community.

If you are interested in learning more about the Arkansas Autism Speaks Walk on October 1, please visit www.AutismSpeaksWalk.org/Arkansas

PBS highlights the importance of community for adults with autism

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Adults with autism were the focus of a two-part series this week on PBS News Hour. Part one highlighted the need to teach adults the skills that will allow them to become contributing members of their communities. The second part focused on Matt Resnik, a young man with autism, and his parents' efforts to secure a fulfilling future for him.

August 11, 2016

Adults with autism were the focus of a two-part series this week on PBS News Hour. Part one, which aired on August 9, highlighted the need to teach these adults the skills that will allow them to build independent lives as members of their communities. The second part, which aired on August 10, focused on Matt Resnik, a young man with autism in Phoenix, Ariz. and the efforts of his parents to provide him with a fulfilling future as part of his community.

“Adults don’t get nearly the attention and support that kids do, maybe because they’re not as cute, or because people forget that autism is lifelong,” said John Donvan, narrator of the piece, when discussing the importance of sharing stories of adults on the spectrum.

In their travels to promote their new book In a Different Key: The Story of Autism, Donvan and Caren Zucker discovered First Place Transition Academy, a program in Phoenix that expands options for people living with autism. Nine young men with autism are the pioneers of this program and live in clusters within an apartment complex alongside retirees with no connection to autism. The groups eat together and learn together. Each participant has two years of specialized training to improve their chances of having what Donvan calls “a successful adulthood.”

The support staff imparts lessons on logistics of adult life, like a class on how to navigate the options available for public transportation, a critical piece to community integration. The young man each have jobs or volunteer positions at an animal shelter, a public garden, a baseball stadium and more. The segment features Josh Kluger, a 36-year-old man with autism who until last year, had no apartment, no paying job and had never ridden a bus on his own. Today, Josh is living in an apartment and commuting on his own to his job at the Arizona Diamondbacks ballpark.

First Place Transition Academy is a program of First Place Phoenix, founded by Denise Resnik, who serves as President and CEO. Resnik’s son Matt was diagnosed with autism in the early 1990s and since then, she has poured her heart and soul into making sure Matt and others like him have opportunities for fulfilling lives as adults. Resnik co-founded the Southwest Autism Research and Resource Center (SARRC) in 1997, an internationally recognized nonprofit organization dedicated to autism research, education, evidence-based treatment and community outreach.

“What people like Matt and other needs, and what we need, are communities,” said Resnik during an interview for the PBS piece. “Communities that include friends, people to support us, healthcare, jobs, recreation, places of worship, transportation. To think that a family can go at this alone to build a life with their loved one isn’t good enough.”

To help ensure Matt becomes a part of community like she describes, Resnik is currently working with more than 75 charitable public and private partners to develop First Place Apartments, a set of 50 studio, one- and two-bedroom apartments for lease by residents supported by a suite of independent living services and amenities. First Place was the recipient earlier this year of the Autism Speaks HeroX House to Home Prize, a prize launched in late 2015 to encourage the development of revolutionary solutions that might empower adults with autism to live as independently as possible while remaining connected to a larger community. First Place was awarded $50,000. Groundbreaking is set for later this year.  In addition, First Place Transition Academy was a 2016 recipient of the Autism Speaks Brian and Patricia Kelly Postsecondary Scholarship Fund.

The House to Home Prize and the Kelly Scholarship Fund are just two of many efforts by Autism Speaks to expand opportunities for and improve the lives of young adults and adults with autism. 

Watch Part One here and Part Two here.

NBA star Frank Kaminsky goes the extra mile to help those with autism

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"Everyone is unique, everyone is different everyone has their own thing. Everyone just wants to be treated the same."

August 16, 2016

Frank Kaminsky may be known to many as a college basketball legend for his time playing with the Wisconsin Badgers, or even more recently as the center for the Charlotte Hornets, but it's what he's doing off the court that's getting praise. 

Recently Kaminsky was highlighted by WBTV for taking the time out of his schedule to become one of the faces of the McAlister’s Deli fundraising campaign for Autism Speaks. Throughout August, McAlister’s will turn its fan-favorite famous sugar cookies blue, the organization’s signature color, and $0.75 from each cookie sold will support Autism Speaks’ mission. Kaminsky met with several families to have lunch at McAlister’s Deli, including a family who has a child with autism.

Kaminsky wanted to support the cause because of how the disability community has touched his family. His mother is a Special Education teacher and his step-sister has Down Syndrome. He told WBTV about getting involved, "Everyone is unique, everyone is different everyone has their own thing. Everyone just wants to be treated the same."

You can read more about Kaminsky’s at WBTV here.

You can read more about our at http://bit.ly/mcalistersforacause

#McAlistersForACause

A successful outing at the Tennessee Autism Speaks Walk Kick Off

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On Thursday, August 18th several dozen families and individuals gathered at the Vanderbilt Kennedy Center to kickoff the 2016 Tennessee Autism Speaks Walk!

August 19, 2016

On Thursday, August 18th several dozen families and individuals gathered at the Vanderbilt Kennedy Center to kickoff the 2016 Tennessee Autism Speaks Walk!

Guests gathered fundraising materials and Autism Speaks resources while mingling and sharing fundraising ideas and strategies with other top and new participating individuals and teams. While dinning on McAlisters dinner and delicious sugar cookies, attendees listened to several highlighted grant recipients funded by Autism Speaks through their personal fundraising efforts in their local community.

Opening remarks and the evenings MC, Kelly Rippin of Fox17 Nashville welcomed guests and speakers Dr. Malow, Professor of Neurology and Pediatrics and Burry Chair in Cognitive Childhood Development at Vanderbilt University School of Medicine, where she directs the Sleep Division; Megan Kelly, Program Director of Dolphin Aquatics, A 2015 recipient of Autism Speaks Swimming and Water Safety Scholarship; Ian McCauley an adult on the spectrum and recent high school graduate (Magna Cum Laude) and a recipient of the iPad grant; and Sarah Callender of Special Kids and the recipient of the Baker Summer Camp Grant. Each speaker shared their personal/organizational successes by receiving funding from Autism Speaks through the grants provided.

The evening closed as individuals left empowered and excited to begin their fundraising efforts for the Tennessee Autism Speaks Walk on Saturday, October 22nd at Centennial Park in Nashville.

You can learn more about the Autism Speaks Tennessee Walk here

Want to join us for an Autism Speaks Walk? See if there's one in your area at Autismspeakswalk.org here


Memorable day at the 10th Annual Nantucket Autism Speaks Walk

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On a picture-perfect day on Nantucket, nearly 500 people gathered to celebrate everyone with autism and pay tribute to Autism Speaks’ co-founder, the late Suzanne Wright at the 10th annual Autism Speaks Walk Nantucket event.

August 22, 2016

On a picture-perfect day on Nantucket, nearly 500 people gathered to celebrate everyone with autism and pay tribute to Autism Speaks’ co-founder, the late Suzanne Wright at the 10th Annual Nantucket Autism Speaks Walk.

Autism Speaks’ co-founder Bob Wright expressed gratitude to the Nantucket community and spoke of his wife’s significant impact and legacy. “Suzanne saw that autism has no boundaries. So she looked to build relationships with global leaders. Even during her chemo treatments she prepared her speech for the United Nations World Autism Awareness Day event. She refused to miss it.”

Suzanne Wright, who passed away just over 3 weeks ago after being diagnosed with pancreatic cancer last November, was also remembered by her friends and volunteer leaders, Abby Perelman and Susan Karger, who led the crowd in blowing bubbles into the morning air on Jetties Beach as a tribute to Suzanne.

“In seeking the perfect way to show our love and gratitude for Suzanne, we remember the joy she brought to people around her…her childlike enthusiasm for life and her complete and total dedication to her family,” said Perelman and Karger.

The “Share Your Heart” canvas project, which was an important element of Suzanne’s personal touch with children on the island, had its name changed on this day to “We Carry You In Our Hearts” inspired by a favorite poem of Suzanne’s written by E.E. Cummings. Led by volunteer leader Robbie Putterman, this was another opportunity for friends and participants to share their memories of Suzanne by writing personal messages on one of four canvases displayed throughout the walk site.

At the start of the walk, Bob Wright and members of his family cut the walk ribbon and followed a special vehicle adorned with an Autism Speaks flag and a picture from a previous year of Suzanne leading the walk with her grandchildren affixed to the back of the vehicle—symbolism of Suzanne still leading this event in the community which has been so supportive of those affected by autism.

Alpha Xi Delta Marks $5 Million Milestone in Fundraising for Autism Speaks

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Alpha Xi Delta’s members demonstrate commitment to support Autism Speaks’ mission nationwide

Alpha Xi Delta’s members demonstrate commitment to support Autism Speaks’ mission nationwide

September 06, 2016

NEW YORK (Sept 6, 2016)– Autism Speaks, the world’s leading autism science and advocacy organization, today announces that Alpha Xi Delta women’s fraternity has raised $5 million for Autism Speaks. Since 2009, Alpha Xi Delta has been a dedicated partner of Autism Speaks.

In 2015, the fraternity became the official North American sponsor for Autism Speaks Walk, the world’s largest fundraising event to support the diverse needs of the autism community. This milestone demonstrates the dedication that fraternity members of Alpha Xi Delta continue to put toward advancing Autism Speaks’ mission to improve the lives of people living with autism.  

"Our commitment to our partnership with Autism Speaks is such an important part of our Fraternity because it is a part of our lives. Our members are Sisters, mothers, grandmothers, aunts and friends who are affected by autism,” said Elysia Gallivan, Alpha Xi Delta’s national executive director. “To reach this milestone of $5 million raised for Autism Speaks is truly amazing. We are so proud to support an organization that works tirelessly to raise autism awareness, fund important research and be an advocate for those affected by autism.”

“Fundraising for Autism Speaks is so important because they are able to provide many answers and resources to families affected by autism,” added Kelsey Gooch, University of New Orleans 2015, and recipient of Alpha Xi Delta’s 2016 Young Philanthropist of the Year Award. “When Alpha Xi Deltas fundraise and volunteer, it's a special moment for us; we get to see our Symphony in action. We come together as Sisters and as a community to make a positive difference for families. It's a wonderful feeling!” 

“We are so grateful for the dedication each Alpha Xi Sister has for our cause. Their exemplary support for our Autism Speaks Walk program and participation in awareness campaigns such as Light It Up Blue have played a pivotal role in helping us deliver on our mission to enhance the lives of people with autism,” said Angela Geiger, Autism Speaks president and CEO. “We couldn’t ask for better partners and congratulate them on reaching this fundraising milestone.”

Autism Speaks Walk is a grassroots movement powered by parents of children on the autism spectrum, generating funds that fuel innovative research and make connections to critical lifelong supports and services. Autism Speaks Walks are open to everyone committed to raising money for the important work Autism Speaks does throughout the community. All participants who raise $150 or more qualify for a commemorative 2016 T-shirt.

Register and fundraise for an Autism Speaks Walk today: www.AutismSpeaks.org/Walk.

About Autism

Autism is a general term used to describe a group of complex developmental brain disorders – autism spectrum disorders – caused by a combination of genes and environmental influences. These disorders are characterized, in varying degrees, by communication difficulties, social and behavioral challenges, and repetitive behaviors. An estimated 1 in 68 children in the U.S. is on the autism spectrum. 

About Autism Speaks

Autism Speaks is the world’s leading autism science and advocacy organization. It is dedicated to funding research into the causes, prevention, treatments and a cure for autism; increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families. Autism Speaks was founded in February 2005 by Suzanne and Bob Wright, the grandparents of a child with autism. Since its inception, Autism Speaks has committed more than $570 million to its mission, the majority in science and medical research. On the global front, Autism Speaks has established partnerships in more than 70 countries on five continents to foster international research, services and awareness. To learn more about Autism Speaks, please visit AutismSpeaks.org.

About Alpha Xi Delta
Founded in 1893 at Lombard College, now Knox College, in Galesburg, Illinois, Alpha Xi Delta inspires women to realize their potential by providing opportunities for Sisterhood, leadership, knowledge and service. The national women’s fraternity has more than 160,000 initiated members and chapters on 128 college campuses. For more information on Alpha Xi Delta Fraternity, visit www.alphaxidelta.org.

From:           

Autism Speaks

Alpha Xi Delta

Lauren Felts

lfelts@alphaxidelta.org

Fall Autism Speaks Walk season kicks off!

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Join one of the more than 30 Autism Speaks Walk fundraising events happening around the country!

Join one of the more than 30 Autism Speaks Walk fundraising events happening around the country!

September 07, 2016

Autism Speaks Walk is the world’s largest fundraising event to support the diverse needs of the autism community. This grassroots movement is powered by parents of children on the autism spectrum, generating funds that fuel innovative research and make connections to critical lifelong supports and services. Begin your fundraising today: Register for an Autism Speaks Walk near you.

Upcoming Walks:

Satruday, Sept. 10, 2016 in New York City - Get ready for the walk with this visual guide to walk day!

Sunday, Sept. 11, 2016 in Cleveland, OH Get ready for the walk with this visual guide to walk day!

Sunday, Sept. 18, 2016 in Columbus, OH; Houston, TX; Detroit, MI

Saturday, Sept. 24, 2016 in Kansas City, MO; Seattle, WA; Richmond, VA; Long Branch, NJ; Westfield, MA; Fort-Lauderdale-Davie, FL

Saturday, October 1, 2016 in Washington, D.C.; Little Rock, AR; San Diego, CA

Find an Autism Speaks Walk near you and start fundraising today!

Autism Speaks awards $105,000 in funding to boost employment and entrepreneurship

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New options for career-seekers with autism and for small businesses searching for talent

September 08, 2016

NEW YORK (September 7, 2016) – The path to a fulfilling career can be full of hurdles, and is often especially challenging for people with autism spectrum disorder. National data indicate that the vast majority are unemployed or underemployed. As part of the organization’s efforts to increase access to employment opportunities, Autism Speaks has awarded $105,000 in funding that will expand entrepreneurship and small business job options for adults on the autism spectrum. The Small Business Technical Assistance Awards connect employment consultants who specialize in autism with aspiring entrepreneurs and job candidates, as well as small-business owners who want to hire and support them. The consultants will provide personalized assistance in launching a small business and succeeding in the workplace.  

“Small businesses have the potential to play a significant role in opening the doors to employment for young adults and adults with autism,” said Lisa Goring, Autism Speaks chief program and marketing officer. “The goal of these awards is to help connect small businesses with qualified individuals with autism in jobs that capitalize on their specific strengths and interests so that everyone benefits. These programs will also empower entrepreneurs on the spectrum with the job skills and social skills that are so important to career success and independence.”

Autism Speaks awarded $35,000 to each of three career programs, based on their experience and expertise, ability to provide technical assistance to small businesses that employ people with autism, the programs’ community networks and plans for outreach. The selected programs help clients learn to manage their challenges and choose their unique career paths. A few examples:

Terrence Fenner excels at repetitive, methodical tasks and types 132 words per minute – more than triple the average speed – with near-perfect accuracy. With guidance from Advocations, in Charlotte, N.C., he found a career in the field of data entry. Another Advocations client, Kristin Dusharm, is a quality assurance manager at a bank and has an exceptional ability to identify patterns. By spotting a discrepancy in a pattern of numbers, she saved her company $100,000.

Liz Beu benefited from a customized assessment of skills and interests. A fitness buff, she found her niche as a strength and circuit-training instructor and has coached more than 100 clients. She credits the career consultants at Food for Good Thought, in Columbus, Ohio. “They helped me learn to advocate for myself,” she said, “and helped me teach others to advocate for themselves, as well.”

Award recipients:

Food for Good Thought - Columbus, Ohio
Program:  Working Outside the Box

Food for Good Thought creates innovative employment opportunities in central Ohio and has helped dozens of people with autism start small businesses in graphic design, toy-making, soap-making, tourism and more. With the Autism Speaks award, the Working Outside the Box program will provide technical assistance, training and mentoring to hundreds of people in their chosen field. Each mentoring team will include a consultant with autism who has expertise in that specific field and who will also earn an hourly wage.

Celebrate EDU - Boulder, Colo. 
Program: Supported Entrepreneur Education and Training

Celebrate EDU’s online education platform teaches people with autism how to turn their passions and skills into viable careers. The Autism Speaks award will support training programs that encourage entrepreneurship through personal assessments, video lessons and interactive workshops for 150 young adults. The grant also funds 15 scholarships and informational events in 10 cities, where local entrepreneurs will share their stories and coach career-seekers.

Advocations LLC - Charlotte, N.C. 
Program: Disability Think

Advocations provides talent acquisition and consulting services for employers, as well as career coaching and performance management for job-seekers with disabilities. With the Autism Speaks award, Advocations will work with the city of Charlotte to assemble a disability task force of entrepreneurs with autism, established business owners and other stakeholders. This task force will develop strategies that can be adapted and replicated elsewhere to improve employment and entrepreneurship outcomes for people with disabilities. The Disability Think program will coach 75 people with autism on problem-solving and brainstorming using a proven entrepreneurial process called design thinking, which can be applied to any business.

About Autism

Autism is a general term used to describe a group of complex developmental brain disorders – autism spectrum disorders – caused by a combination of genes and environmental influences. These disorders are characterized, in varying degrees, by communication difficulties, social and behavioral challenges, and repetitive behaviors. An estimated 1 in 68 children in the U.S. is on the autism spectrum. 

About Autism Speaks

Autism Speaks is the world’s leading autism science and advocacy organization. It is dedicated to funding research into the causes, prevention, treatments and a cure for autism; increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families. Autism Speaks was founded in February 2005 by Suzanne and Bob Wright, the grandparents of a child with autism. Since its inception, Autism Speaks has committed more than $570 million to its mission, the majority in science and medical research. On the global front, Autism Speaks has established partnerships in more than 70 countries on five continents to foster international research, services and awareness. To learn more about Autism Speaks, please visit AutismSpeaks.org.

Autism & National Suicide Prevention Awareness Month

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Here are some important safety resources for the autism community.

September 13, 2016

September is National Suicide Prevention Awareness Month, an initiative started by the National Alliance on Mental Illiness. A subset of people with autism are also affected by mental health challenges, so Autism Speaks wanted to share some important safety information and resources with our community. 

  • Christopher McDougle, MD, director of Massachusetts General Hospital’s Lurie Center for Autism, a member of Autism Speaks Autism Treatment Network, was featured in a “Got Questions?” post discussing the connection between autism and depression. You can read this post here.
  • In 2013, Autism Speaks board member and Family Services Committee member Sallie Bernard shared a list of 8 Critical Measures to Counter Suicide.
  • The National Suicide Prevention Line is a 24-hour, toll free, confidential suicide prevention hotline available to anyone in suicidal crisis or emotional distress. Learn more at www.suicidepreventionlifeline.org or call 1-800-273-TALK (8255).
  • The Autism Speaks Autism Safety Project provides safety information and resources for families and first responders, including Emergency Medical Services professionals.

For additional resources, contact the Autism Speaks Autism Response Team at familyservices@autismspeaks.org or 888-288-4762 (en Espanol 888-772-9050).

 

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